What happens if a child is approved for SSI and later has benefits stopped?

(Visit the Social Security Disability Resource Center) –

“What if my child was awarded SSI and then was denied and taken off benefits when she turned 18?”

This situation was mentioned in an email. The individual stated that their child was granted SSI disability and at 18 had those benefits stopped.

I wrote back with the following:

It sounds like your daughter went through an age-18 redetermination. I couldn’t tell if her redetermination is in progress or if she has gotten a notice that benefits will be ceased.

In all disability cases (adult, child, widower), SSA will try to determine if the individual is disabled NOW, presently. So, current medical records are vital. As a disability examiner and in claimant representation, we always told individuals that SSA needs something current to look at, so recent medical treatment is usually needed.

There are instances in which a person’s own physician (SSA refers to this person as a treating physician) can supply a strong supporting statement for the case. The purpose of this is to cut through the static of the records and provide the information that SSA is really looking for, which is evidence of functional limitations. These statements are useful enough that most disability representatives, attorney and non-attorney, will try to obtain them for disability hearings.

If the decision on your daughter’s case has not been reached, you may want to contact the disability examiner who is working the case to see if there is any information they need or seem to be lacking. At the very least, you can establish contact with them and get a case status.

If the case has been denied, you are in the position of requesting benefit continuation while you appeal. Keep in mind that you only have 10 days in which to do this, though.

Also, keep in mind that if the case is ultimately lost you would be in the position of having to repay those benefits. If the benefits have been discontinued, consider appealing. And consider getting representation since the statistical likelihood is that you will need to go to a disability hearing at some point. That is the road most individuals who are denied find themselves on. And on the topic of representation, find someone local. Good luck.

For more information about SSD and SSI on this site, please refer to the pages and sections linked below.